After 8 months of being on the dreaded prednisolone, I have, as soon as I feel ready, been given permission to start weaning myself off of the steroids. I say when I feel ready as although my doctor gave me the option to start now, today, I’m sitting just outside of the safe zone. The specific Liver enzyme looked at (ALT/AST) for gauging any inflammation in healthy humans sits between 12 and 34. Last May before diagnosis, I was in the 1000’s. As of Tuesday, my latest blood test, I sit at 38, and I am taking no chances! So after speaking with my Gastro, I said if I have to wait a week or two for my levels to be under 34, after 8 months, I think I’ll cope.
The weaning process is going to take roughly 3 months. I’m sure if I wanted to, I could probably do it a little quicker, but as the old tale of the tortoise and the hare goes, slow and steady wins the race, and I have not gone through this past year just to fuck it up right at the end. There is still a chance I could wean right down to being next to off the steroid and the disease flares up again, but til then, I will hold out for my immune system behaving and the Azathioprine does it’s job! 🙂
I look back to this time last year and cannot believe how sick I was without even realising. I’d been poorly for a few months before, and I dread to think if I’d have left it any longer, what kind of state I could have been in. I have been extremely fortunate that I got blood tests, biopsied, diagnosed and treated pretty pronto. I have also been extremely lucky that even though this illness has tested me mentally and physically, and have had to give up things I used to be able to do willy nilly before, I still have the ability to be able to do a lot of things I still love. I can still work full time. I can still teach the fabulous PDA army. I’m still mobile. There are so many illnesses out there that can take away all those things and leave people dependant, and my heart truly goes out to them. But I have still had to push myself. There are so many times I have wanted to give up, throw the towel in, but I’ve had so many wonderful people around me that have given me the prod in back as and when I needed it, and to you guys, I am forever grateful.
I come out the other side a totally different person. I’m more aware of my body and what I stick in it nowadays. Even though I have always been active, and I know now how beneficial it is to keep active, even when you really don’t want to, that’s when it matters the most. I know I can book doctors appointments without having to ask my mum to do it for me (so adult!). I’ve come out grateful for the life I have and all the people I have in it, and after this little blip, I will now, hopefully get normality restored. I’m still mad as a box of frogs, just slightly on the chubby side and not filled with wine so much (fingers crossed the extra chub will disappear as I taper off the steroids!).
I hope your Friday is a good one, drink all the prosecco for me! And dammit, nobody tempt me with tequila, hookers and cocaine, for at least the next 3 months!!! (just kidding, but seriously, all those 3 things are really bad for you apparently…).
Peace & Love,